June 8, 2020

I have a medical emergency and need immediate surgery.

I contacted a doctor at a different hospital today (an excellent hospital) and we had a Zoom conference. He reviewed my scans and test results (and showed them to me via Zoom) and determined that I need immediate surgery because there is a total blockage in my colon and the feces are significantly backed up due to the tumor. It is my understanding that in a few days I will not be able to eat at all. He wanted to schedule the surgery for tomorrow or Wednesday but cannot because I have to take another COVID test before they can operate to remove the feces. He is scheduling me to meet with a medical and a radiation oncologist tomorrow. He said that I should not eat any solid food until I have the procedure which will result in a colostomy bag that I will wear for the next several months. He described my symptoms for me just by looking at my scans. He also said (without my prompting) that I am not able to eat and get the proper nutrition due to the back up and need to get full nutrition in order to have success with the chemo/radiation. He also said that the pathology results from my sigmoidoscopy have not yet been finalized and he needs to see the final report.

Why didn’t anyone at the other hospital tell me this or do anything about it? They were looking at the same scans. I could have already had this surgery. Why didn’t they tell me to stop eating solid foods?

I waited until 4:00 p.m. to hear from the sigmoidoscopy doctor about my final test results and, when I didn’t, I put in a call requesting that the report be completed and uploaded today. Then, I called the pathology lab, got the name of the pathologist handling the biopsy, and asked if the report would be completed today. The secretary was not pleased to hear from a patient. Tough. My surgeon needs the report and the lab said it would all be done today. Where is it?

Then, the sigmoidoscopy doctor called and I told her that I had met with a surgeon and he needed the report. I told her that there had been a significant delay between my receiving the results of my scans verbally and the reports being uploaded and that there could be no delay here. She said that the pathologist expected the sample to be done tonight and that she would write the report tonight and, if it wasn’t done, she would follow-up in the morning. She also said she would call me when the report was finished and that it would be immediately uploaded. A few minutes later she called to confirm that the results were in – I have confirmed colon cancer – and the report is uploaded.

I’m exhausted.

Love, Molly2923

One thought on “June 8, 2020

  1. *hugs* You’ll start to feel better after surgery. I had a colostomy and now have an ileostomy. Coincidentally, I have posts going up tonight and tomorrow night about my colostomy/ileostomy. The first weeks with a colostomy aren’t easy as things heal, but it can be done. If you haven’t already, go over to http://www.colontown.org. They have a group within Colontown that is all about having a colostomy/ileostomy and there’s always someone who can answer whatever questions you have. Feel free to leave me a message or email me if you have questions or just need to vent.

    Like

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