Lots, lots, lots of good stuff.
Last Friday (3 days ago), a friend referred me to an oncologist and reached out to him. I reached out to him as well. He was out of town so I did not expect to hear back until this week. Well, he wrote back on SUNDAY and then contacted me on Monday morning at 8:40 a.m. about my medical records. Then, he had his scheduling coordinator contact me and she was an absolute doll – very knowledgeable. She actually talked to me – about my symptoms, the pain, and followed up letting me know when I would next hear from her. She was great.
You have to understand that I have not had any contact with my now former oncologist since my first few days in the hospital in June. When I need to contact his office or his office needs to schedule me, I speak with a different person each time, often leaving or receiving just a message. I have no idea who they are or what department they are with and, when I do reach them, no one talks to me or can answer a question because their limited job is to schedule an appointment. It is the most dehumanizing system I have ever experienced.
So, to have a doctor take time out and reach out to me promptly and to have a point of contact with one administrator who is kind and knowledgeable – well, I feel like a patient should – like a human being. He’s going to fit me in ASAP.
I changed my colostomy bag again today. It is getting a little easier but it’s still difficult for me. I don’t know if I’ve cut the right size but I have an appointment with the stoma clinic in a few days so I’ll find out. I think everything looks good but it’s nerve-wracking when I take the bag off. It pulls the skin (practically on top of my incision) and I never know if the glue goo has gotten around the stoma and will hurt it or pull out the stitches (can’t think about that – yuck!!!).
What else? I finished one of my prescription bowel meds so I didn’t produce any stool today – painful, not good. I’ll be increasing other over the counter meds as directed. Hopefully, my bowel will learn it has to do a lot of the work on its own again. My poor bowel. It really isn’t happy about all this …
I also finished my daily shots of blood thinner a few days ago – thank god! I really hated giving myself those shots and I seemed to get worse and worse at it as time went by. I had to put it into a fatty spot but I don’t have any fat left so it was just very tough. Not fun.
What else? Blood again when sloughing – not much but still frightening.
Tonight I was reading an article in the newspaper about a couple who had cancer. The husband had Stage 4 colon cancer, received treatment and became cancer free. I was told this isn’t possible. I don’t get it … Maybe I’ll have a good result too …
Anyway, that’s it for this busy bee. Good night!