July 18, 2020

It’s 2:15 a.m. on July 17, 2020. I’m in trouble bubble. Really sick/pain. The surgical team never called me back about my output. I left a second message yesterday morning and nothing. I haven’t had output since Sunday. I am in severe pain when I urinate and when I don’t. I’m a mess.

It’s 6:30 a.m. on July 17, 2020. I paged my surgeon and told him about my lack of output and urinary pain. He was not concerned about my lack of output because it’s not accompanied by other symptoms including nausea, vomiting, distension, etc. He said I could go back on Ducolax or just stay on Colase and Senna which I’m already taking. I don’t know what’s best. He did not address my urinary pain.

It’s 1:30 p.m. on July 17, 2020. I met with my colostomy nurse. My mom drove me to the hospital – the ride was brutal – very bumpy. I put a sleeping bag down in the backseat to cushion the bumps – it helped a little. I told the nurse about my urinary pain and she had an admin get in touch with the doctor and have a urinary test ordered. She helped me change my bag and correctly re-sized my stoma. She also gave me new products that will be easier to use and will fit my body better. It was a huge relief to talk to a professional and get real help. I told her about the lack of stool output and she said that you have to wean yourself off the drugs – not stop cold turkey (I was given a certain number of Ducolax pills and took them all with no prescription refill).

When we were done, she had me drink a glass of water and sent me for my urine test.

After my colostomy appointment, I got Ducolax over the counter (but didn’t take it – was going to wait for morning to get back on the schedule). Then I got a giant burrito. THEN I HAD OUTPUT!!! I had output for hours and hours all night long – painful/cramping but who cares!!! My system is working again!!!

I also got my urine test results. The numbers are off the charts and are consistent with the urine tests I got in the hospital when I complained of the pain. I don’t know what any of it means. I need someone to look at the results and tell me what’s wrong.

I did a bunch of pre-move errands and then went home. Exhausting day.

It’s 8:15 a.m. on July 18, 2020. I need to start packing again. Lots to do.

Talk to you later!

I have done almost nothing all day. I have been laid up with abdominal pain and feeling weak. Watching Netflix. Didn’t eat most of the day and then forced myself in the late afternoon to get calories. My shoulder bones are sticking up. It’s disgusting and horrifying.

I never know what will be hour to hour let alone day to day. But I’m here and I guess that’s all that matters.

Love, Molly2923

One thought on “July 18, 2020

  1. One thing you can try for calories and protein are Ensure Clear “shakes”. Personally, I like the Apple ones, but they come in berry flavor as well. They truly are clear, so they don’t have the creamy (yuck) taste of the regular Ensure shakes.

    I wish I could do more to help you from afar. *Hugs*


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